AN EXPLORATION OF ADULTS’ LIVED EXPERIENCES AS CAREGIVERS IN KAMPUNG MUARA TUANG, SAMARAHAN

Irsalina Maisara, Onn (2023) AN EXPLORATION OF ADULTS’ LIVED EXPERIENCES AS CAREGIVERS IN KAMPUNG MUARA TUANG, SAMARAHAN. [Final Year Project Report] (Unpublished)

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Abstract

Introduction: A caregiver’s responsibilities range widely from accompanying to assisting ADLs, short post-acute care after a hospitalization, to long-term constant ongoing care in chronically ill elderly. Caregiver burden is associated with caregiver’s demanding responsibilities. It is important to address caregiver burden however not much is known about the experience itself especially in a rural area. Objectives: The objectives are to identify the factors of caregiving, explore the impacts of caregiving on lives and relationships, and investigate the feelings of long-term caregiving. Methodology: The research employed a qualitative methodology using descriptive interpretive research design by selecting participants with purposive sampling. The interview was conducted as one-to-one and was audio recorded. Informed consent was obtained from all the participants. Findings: A total of 5 full-time caregivers were interviewed, 4 females, and 1 male. All the females are unemployed, while the male caregiver was employed. Three main themes were produced which are filial obligation, emotional distress, and acceptance of roles. Under each main themes, subthemes were presented to fully understand the experiences. Under filial obligation, it was found that caregivers felt a sense of responsibility, familiarity, and companionship as factors of caregiving. While under emotional distress, “losing” the other person and denial emerged as impacts of caregiving on lives and relationships. Lastly, under acceptance of roles, caregivers reported feelings of long-term caregiving as a cultural norm and had personal expectations for themselves. Conclusion: The findings contributed to understanding the caregiver’s lived experiences, especially in the context of a rural area where limited research has been conducted. By unraveling the factors, impacts, and feelings related to caregiving, this research provided insights that can assist the development of interventions and support systems to alleviate caregiver burden and enhance the overall well-being of caregivers in rural communities.

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