Care demands on mothers caring for a child with Down syndrome: Malaysian (Sarawak) mothers' perspectives

Chan, Kim Geok and Khatijah, Abdullah Lim and Ling, How Kee (2015) Care demands on mothers caring for a child with Down syndrome: Malaysian (Sarawak) mothers' perspectives. International Journal of Nursing Practice, 21 (5). pp. 522-531. ISSN 13227114

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Official URL: http://onlinelibrary.wiley.com/doi/10.1111/ijn.122...

Abstract

This paper examines the experiences of mothers caring for a child with Down syndrome in the Malaysian (Sarawak) context. Qualitative interviews were conducted with 26 biological mothers of children with Down syndrome aged 18 years and below. They were accessed through selected child health clinics, community-based rehabilitation centres and schools using purposive sampling within two regions in Sarawak, one of the two Borneo States of Malaysia. Major themes emerging within the context of care demands were children’s health, developmental delays, daily needs and behaviour issues. The insights obtained into the care demands experienced by mothers of children with Down syndrome have several implications for practice by care professionals.

Item Type: Article
Uncontrolled Keywords: behaviour, care demands, child, Down syndrome, experiences of mothers,unimas, university, universiti, Borneo, Malaysia, Sarawak, Kuching, Samarahan, ipta, education, Postgraduate, research, Universiti Malaysia Sarawak
Subjects: R Medicine > RJ Pediatrics > RJ101 Child Health. Child health services
Divisions: Academic Faculties, Institutes and Centres > Faculty of Medicine and Health Sciences
Faculties, Institutes, Centres > Faculty of Medicine and Health Sciences
Depositing User: Karen Kornalius
Date Deposited: 13 Nov 2015 08:16
Last Modified: 21 Feb 2017 00:55
URI: http://ir.unimas.my/id/eprint/9741

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