Quality of life and experience of mothers with Down syndrome children

Chan, K.G (2015) Quality of life and experience of mothers with Down syndrome children. Community Medicine and Public Health Bulletin, Faculty of Medicine and Health Sciences, April (2). pp. 6-7.

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Mothering a child with Down syndrome (DS) could be stressful and emotionally overwhelming for some families. Children who are born with this condition are often associated with a variety of developmental delays and various congenital anomalies which require care in the hospital soon after delivery and subsequent medical follow-up. In Malaysia, the Ministry of Health reported an annual figure of more than 600 new cases of children with DS which constitutes almost a quarter of the total number of the children (below 12 years old) with newly reported disabilities (Malaysia, Ministry of Health (n.d.). Previous studies have highlighted the need to examine the multi-dimensional, holistic concept of quality of life (QoL) to determine the well-being and needs of mothers of child with disability (WHOQOL Group, 1996). There are little published studies related to experiences of mothers in Malaysia, particularly in the Borneo state of Sarawak. The purpose of the recent study was to understand the experiences of mothers having a child with DS and their perceived QOL in the local context. It also aimed to examine the relationship between mothers’ selected background variables and their perceived QOL.

Item Type: Article
Additional Information: Chan, K. G., Abdullah, K. L., Ling, H. K. (2013). Quality of life among Malaysian mothers of child with Down’s syndrome. International Journal of Nursing Practice, 19 (4): 381–389. Malaysia, Ministry of Health (n.d.). Year 2004-2006 Annual Report, Family Health Development Division. Retrieved 4 August 2008, from http://fh.moh.gov.my/uploads/laporan_tahunan_kesihatan_keluarga.pdf. Van Riper, M. (2007). Families of children with Down’s syndrome: responding to a change in plans with resilience. Journal of Paediatric Nursing, 22(2), April, 116-128. WHOQOL Group. (1996). WHOQOL-BREF: Introduction, administration, scoring and generic version of the assessment. Geneva: Program on Mental Health, WHO.
Uncontrolled Keywords: Down syndrome, mothers, child, Sarawak, unimas, university, universiti, Borneo, Malaysia,Kuching, Samarahan, ipta, education, Universiti Malaysia Sarawak
Subjects: H Social Sciences > HQ The family. Marriage. Woman
Divisions: Academic Faculties, Institutes and Centres > Faculty of Medicine and Health Sciences
Faculties, Institutes, Centres > Faculty of Medicine and Health Sciences
Depositing User: Geok
Date Deposited: 02 Nov 2015 04:47
Last Modified: 17 Jun 2016 01:27
URI: http://ir.unimas.my/id/eprint/9244

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